If you are a caregiver for someone with Parkinson’s or Alzheimer’s disease, you have a big job. You help to maintain your loved one’s quality of life as much as you can. You also educate yourself about all of the treatments, symptoms and progression of the disease. And you keep track of appointments, medications, and exercise. Last but not least, you offer your loved one the love and support they need to meet all of the challenges of these diseases.
As a caregiver, while you do have many responsibilities to your loved one, you also have responsibilities to yourself. Below are some easy tips to help you in your role as a caregiver:
- Take time for you – It is important for you to have your own life and to have time to relax. If needed, get other family members to help you, or hire someone to assist you with your loved one.
- Learn as much as possible about Parkinson’s or Alzheimer’s – This way you will know what changes to expect in your loved one. You also will know the symptoms and behaviors inherent in the disease and will be best positioned to help her.
- Allow your loved one to participate – Do not try to do everything on your own. Allow her the time to do some daily activities on her own. There are many helpful Parkinson’s products that can help your loved one with her daily activities, such as the Dress EZ Dressing Aid, or the Dressing Stick and Shoehorn.
- Talk to your loved one about end of life issues – These things are hard to talk about, but you should know what she wants regarding a living will, power of attorney, and do not resuscitate orders.
- Have realistic goals – A person with one of these diseases can still lead a full life, but do not try to have her do too much. Set goals that are attainable.
- Do not stop your own life – Keep meeting with your friends, keep up your hobbies, and keep a normal schedule. You will feel more energized and you will not start being resentful.
- Continue to exercise – There are few things that are better for our mental and physical health than regular exercise. Continue with your exercise regimen as you provide care for your loved one.
- Find a person to talk to – You are there for your loved one, but you also need to have someone to support YOU. Talk openly and honestly with someone that you trust. If you can’t do that, you can join a support group for people who care for Alzheimer’s and Parkinson’s patients.